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Amanda has lived with glaucoma for as long as she can remember. “I had my first surgery at 6 months of age. I have spent 52 years on this journey,” she says. Her diagnosis is part of a strong family history of the condition, with multiple generations affected.
“We have a significant family history - I have congenital glaucoma, my brother has elevated intraocular pressure, my sister has juvenile onset. Both my children carry the gene, and my daughter uses drops for raised intraocular pressure. Both of my sister’s children have glaucoma.”
Growing up with glaucoma came with challenges, particularly in the early years. “My parents dealt with it as a child. It was frightening as I only have one eye with sight.”
Accessing the right care was also difficult at times, especially living in regional Queensland. “We struggled to find a decent specialist locally - I lived in central Queensland.” But finding the right support made a significant difference.
“Eventually, with the help of Glaucoma Australia, we found a great specialist in the city who made me feel confident for the first time in the management of my care.”
Despite the challenges, Amanda has never allowed glaucoma to define or limit her life.
Today, she works full-time as a nurse specialist, managing a hospital team, and has completed both a bachelor’s degree and postgraduate studies. She continues to live an active and fulfilling life.
“My life has never been limited by glaucoma,” she says.
“I work full time as a nurse specialist. I manage a team in a hospital. I have a bachelor and post graduate degrees. I drive. I’ve lived overseas and travelled extensively.”
She also prioritises her physical health and wellbeing. “I swim four times per week in either the ocean or pool. I love to cycle.”
While she acknowledges that living with glaucoma can be stressful at times, her overall outlook remains positive. “It’s been stressful and scary at times but never stopped me from doing anything I want to do.”
Amanda credits both her support system and her mindset for helping her navigate the condition. “Definitely Glaucoma Australia helped when I needed a specialist who was right for me as a teenager.”
She also reflects on the role her family played in encouraging her independence. “I think being allowed to live my life on my terms has had the biggest impact. My mum never stopped me from trying anything.” That sense of determination continues to guide her today.
For those who are newly diagnosed with glaucoma, Amanda offers reassurance and practical advice.
“It’s going to be ok. It’s a lifelong journey - work with your team of eye professionals, use your medication and go to your appointments.”
And most importantly:
“Be brave.”
Amanda’s story is a powerful reminder that while glaucoma is a lifelong condition, it doesn’t have to define what’s possible.
Every glaucoma journey is different. If you’d like to share your story and help others feel less alone, tell us about your experience here: https://glaucomaaustralia.typeform.com/ShareYourStory
Support for People Living with Glaucoma
If you or someone you love has been diagnosed with glaucoma, you are not alone.
Glaucoma Australia’s SiGHTWiSE program provides free education and support to help people understand their diagnosis and manage their eye health.
Support includes:
Qualified orthoptist educators and health counsellors
Free phone support and guidance
Educational resources and webinars
Access to peer support communities
📞 Call: 1800 500 880
🌐 Learn more: glaucoma.org.au/sightwise
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