Share
We see you and we hear you. Childhood glaucoma is a rare type of glaucoma that is diagnosed before someone turns 18 years old. Living with childhood glaucoma can be challenging, but there is little research out there that tells us about how the condition may impact on someone’s life.
A team of researchers at the Australian and New Zealand Registry of Advanced Glaucoma (ANZRAG) at Flinders University, Adelaide, are dedicated to putting the spotlight on childhood glaucoma. They want to create better support systems and promote awareness of this rare condition.
So far, the ANZRAG team have interviewed almost 50 adults with childhood glaucoma and asked them about how the condition has or has not affected their lives in some way.
From these interviews, they have made a questionnaire to measure the impact of childhood glaucoma and need as many people as possible to complete it. It only takes 10 to 20 minutes.
If you have been diagnosed with glaucoma before the age of 18 years, the ANZRAG would love to hear from you.
To get in touch and receive an electronic or hard copy of the questionnaire, please contact Lachlan Knight via email or phone.
Email: Lachlan.WheelhouseKnight@flinders.edu.au
Phone: +61 8 8204 6986
*This questionnaire has been approved by the Women’s and Children’s Health Network Human Research Ethics Committee of Adelaide.
Researchers from the Indiana University School of Medicine hope to develop new glaucoma therapies by testing human neurons and a regenerative therapy to rescue dying visual neurons. They’ve received a new five year, US$2 million grant from the National Eye Institute for the project.
People of African ancestry are five times as likely as others to develop glaucoma and up to 15 times as likely to be blinded by the condition, but most research has used data from people of European ancestry.
We are inviting individuals who have accessed eyecare services previously to participate in a focus group discussion so that we can better understand what good eye care means to the patient.