The Australian and New Zealand Registry for Advanced Glaucoma (ANZRAG)
Families affected by Congenital Glaucoma attended our first annual support group morning tea as part of World Glaucoma Week (8-14 March). It was wonderful to watch all our families and speakers connect.
This presentation covered the history of the ANZRAG and how it has developed over the years to include all types of glaucoma, including childhood and congenital glaucoma. What we do with the registry and the genetic testing and support we offer was discussed. We also talked about our special interest in understanding what congenital glaucoma means to our patients, and the journey you and your family have had.
Date: Tuesday, 10 March 2020
Time: 10am to 1pm
Location: Beaumont People, 259 George Street, Level 29, Sydney
Guest Presenters: Bronwyn Sheldrick, Dr Emmanuelle Souzeau and Lachlan Knight
Dr Emmanuelle Souzeau, Researcher and genetic counsellor in the Department of Ophthalmology, Flinders University. She has experience in medical research, genetic testing, patient counselling and support.
Lachlan Knight, Orthoptist, currently undertaking PhD with Dr Jamie Craig at Flinders University, research is for childhood glaucoma and the psychosocial impact on the individual and their family, as well genetics and clinical outcomes.
Bronwyn Sheldrick, Coordinator of the Australian and New Zealand Registry of Advanced Glaucoma, currently working on research with Lachlan. Bronwyn and Lachlan would love to hear people's stories, and to interview them formally (for research) and enrol the families into the ANZRAG project.