Denise’s Story: The Mental Health Side of Glaucoma

Denise was in her early forties when she was diagnosed with glaucoma, about forty years ago. Now in her eighties, she has spent most of her adult life managing the condition.

Her treatment has been extensive. Years of eye drops meant a lot of trial and error, and she has since had two trabeculectomies, a revision, laser treatment and stents. Each worked for a while. The two trabeculectomies, one difficult and one “a breeze”, have given her the longest-lasting control of her eye pressure.

Denise felt supported from the start and remains grateful for the “wonderful and kind treatment” she has received over the years.

“I have always had a positive outlook about this condition.”

She says she has long known she is lucky, with treatments and medical staff she describes as “world class.”

More recently, things have become harder. Despite low eye pressures, Denise is losing her sight. She has put away painting and embroidery, and she finds that sunlight and glare cause eye pain and distress even with extensive dry eye treatment.

“Reading for any amount of time is difficult.”

The change has affected how she feels as well as what she can do.

“So the mental health aspect of having glaucoma is huge.”

Denise has not used a support service. She says it has been harder to feel informed and supported since moving interstate, and that she always felt she had the information she needed from her specialist in Sydney.

Her advice for anyone newly diagnosed is practical.

“Be pro active, find a medico you feel is competent and kind and follow his/her advice.”

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